After seven years without any contact with another family whose son was also diagnosed with Anorchidism, I found four other families within the space of eighteen months. All these families felt isolated, hurt and also felt a sense of guilt.
With this in mind I set up a support group so that families, spread across the country and the world, can keep in touch with each other by newsletter and possibly a yearly meeting. I hope that then they will then feel that they are no longer alone.
Anorchidism Support Group Founder, 1995
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ASG reached a wonderful milestone on 7th July 2005, as our group had been founded for 10 years.
During this 10 year period we have been contacted by over 100 family's whose sons were diagnosed with Anorchia from around the world, and this number is steadily rising, the parents of children who were diagnosed with Anorchia (Vanishing Testes Syndrome, Testicular Regression Syndrome, etc), had the same questions, worries and concerns as did the first family that contacted us here at ASG. When contacting us, we have been able to help answer their questions, from not only in regards to information about Anorchia but also from first hand experience.
Anorchidism Support Group Founder, 2005