Down Syndrome Liverpool

WELCOME TO DOWN SYNDROME LIVERPOOL NEWSLETTER May 2005

In this edition we concentrate on our older cildren and young adults of secondary school age.

Transition from Junior to Secondary, some members views

Shauna

Our daughter Shauna did not get into the school of our choice and we decided that we would not appeal, and
she went to the loca! comprehensive. Both our boys had gone there, both did very well academically, but whilst one had had a good experience the other had not.

This time it was different yet again as I had to look at the school in a whole different way. I particularly worried that Shauna would not be seen as an individual, and my first meeting with the head of pastoral care was not encouraging when she said "we have another down's child" I quickly pointed out that it was important that Shauna was seen as an individual. A meeting was then arranged with the SENCO and the head of year. I made
a book of all Shauna's achievements ( which are numerous) and took this to the meeting.
I explained that this was Shauna, this is who they were getting.
 

Shauna took a couple of months to settle in but soon joined the choir, the drama group, the German club and has just recently swam for her form.

She loves school, she still has the same classroom assistant who is a huge help.
I approached the first parents evening with not knowing what to expect. I was so surprised, the school had taken on board my concerns, and I can only say that Shauna has been seen very much as an individual. One teacher said she looked forward to Thursdays because Shauna would be in her class. We are very pleased with Shauna1 s progress, she works hard and we are very proud of her.

Margaret Hogan

Joe

A few words on starting secondary school!!

"By the time you read this, Joe will very near the end of his first year at secondary school - where does the time go? He did not appear to be in the least bit bothered about moving from primary to secondary school and I can honestly say he took to it like the proverbial duck to water! He couldn't wait to put on his new uniform and get on with it.
Apart from feeling a bit tired for the first couple of weeks, which was to be expected because he had a lot more walking to do as he went from lesson to lesson, he settled in really well. It didn't take long for him to find his way around and to learn his timetable and he is now able to remind me on which days he needs to take in his PE kit etc.
 

The school has been very supportive and welcomes contact with parents so any little problems which have arisen have been dealt with promptly. It was also a big help that liaison between the primary and secondary schools was good which enabled Joe to visit his new school several times whilst in Year 6."

Pat Baxter

Christopher

Transition from Junior School to Secondary.

Our son, Christopher (14), is now in year 8 of his secondary school.
 

He moved from Juniors in September 2003 along with his peers to the local secondary school. As usual. Christopher was their first pupil with Down Syndrome.
 

We had a fairly horrendous time at Infant school (where again, he was their first pupil with Down Syndrome) where there seemed to be little understanding of the condition despite our efforts to explain it which, we must point out, was a totally different attitude to Junior school where Christopher was regarded as just another pupil who needed extra help - just as it should be.
 

Secondary school was an unknown quantity.

Would he have a smooth transition? Would they be willing to learn? Would Christopher be able to cope with finding his way around a much larger school? Would he be bullied by the pupils that didn't know him? All these thoughts ran through our heads as September approached.
 

We had been fortunate that his ESA had decided that she wanted to follow him to secondary school and was allowed to do so.
His ESA is excellent. She knows just when to assist and when to stand back. Christopher works well with her and she has made a point of learning as much as she can about DS and integration into mainstream and is always keen to learn more.
Well, yes, he did have a smooth transition which he just took in his stride as part of growing up.
Yes, the school and the Senco were willing to listen and to learn and to put into practice what they were advised. They also read and accepted the wonderful "Including Pupils with Down's Syndrome" publication from the DSA which we gave them.
Yes, Christopher found his way around the school with surprising ease to the extent that, when the first "meet the teacher" day came around a few months later, he was showing us the correct way to the classrooms. As far as bullying is concerned, apart from - literally - two slight incidents which the school dealt with promptly, there have been no problems to date. We should point out that with the second incident, other pupils were involved and only Chris had the extra needs. It was really more a case of tomfoolery that bullying.

During his first year, Chris did the same work as the rest of the year (albeit toned down a little to suit his needs). In this, his second year, he has been placed in smaller classes for some subjects (still taught by the subject teacher and still following the curriculum but at a slower pace). Chris has benefited from this and is able to follow and learn subjects to a degree that we would have though impossible ten years ago.
At a recent meeting with the teachers, each of them commented on his good behaviour. willingness and eagerness to learn and his steady progress in all subjects. He did actually receive a gift token for attendance and behaviour last term.
The school has over 200 pupils with statements, we believe, so they must be congratulated on their policy of integration with Christopher .
Have we just been lucky?
We don't know. What we do know is that Chris is doing well at ffchool and, perhaps more important, he enjoys going to school and is progressing.
He has benefited from learning with his peers, participating in all aspects of the school (including a week in Colomendy in his first year there).
He is first and foremost a pupil of the school and secondly, he has additional needs. They have never made Chris out to be a problem (all too common in some schools) but have accepted that any shortcomings lie with them and need to be addressed by them - not Chris.
A really good example of putting the pupil first. We hope that this will be repeated in other schools throughout the area.
We don't know what future years will bring but we have already started discussions with the Senco regarding attending college (part-time at first) when the time comes to be thinking of leaving school. That time seems to be approaching very, very quickly.
To those whose children are approaching the transition to secondary school, we would say this. Our kids can surprise us and, regardless of our fears, have a knack of showing us to over-concerned worriers. I think most of us will fit into that category. We certainly did!

Colin <& Marilyn Hill


The Youth Service

Purpose
Liverpool   Youth Service  works to provide learning opportunities, programmes, activities and experiences for ad young people with whom it comes into contact.
The Service is striving to provide educational, social and recreational opportunities which are responsive, locally accessible, stimulating, affordable and of good quality.
Services are provided through partnership with the voluntary sector, Connexions, the police, YOT (Youth Offending Team). Citysafe and other agencies, management committees and users.
The Service aims to provide flexible educational facilities to young people within their communities to enable the best possible use of premises and resources.
Particular emphasis is placed on securing services for young people who have had least benefit from the education system and encourages their wider participation in the Service. Young people from black and minority ethnic backgrounds are identified as being highly represented among those receiving least benefit from the education system.
The Service is currently subject to a series of internal area inspections, which conform to the standards outlined in the Ofsted Youth Work Inspection Framework. Inspections take into account changes in youth work nationally and locally and report on the quality, efficiency and effectiveness of the management and delivery of the work within the city.
Corporate Priorities
The Youth Service contributions will be developed in the body of the plan. It has a high political profile and the executive management team of Liverpool City Council has identified the following priorities for action:
a strategy to develop a co-ordinated service for children and young people that takes into account the needs of those who are under 13 years old
The Youth Service is to have a wider involvement in Summer Splash and other holiday schemes focusing on targeted groups within a universal approach
The Youth Service also recognises the importance of Disability Equality. The Service strides to include young people with all abilities to take part in their programmes.
Such activities as the Duke of Edinburgh's Award and the Youth Achievement Award welcome young people with disabilities. In recent years I have embarked on doing outdoor education with young people with disabilities. They participated in activities such as; climbing, canoeing, walking, cycling, etc. All activities are overseen by qualified instructors and with the appropriate equipment
If you require any more information or would like to know about our various units, please do not hesitate in calling me.
Debbie Tweedle
Disability Access Officer
0151233 2931
 

N.B.

Parent Partnership Service
Is offering information sessions for parents about the transfer to Secondary School for children with SEN.

•      Parents of children at School Action/School Action Plus
•      Parents of children with statements
Please call Kelly Hargreaves for information 0151 2332826



You may like to try these websites
http://www.specialneedsfamilyfun.com/files/downsyndrome.html

http://www.after16.org.uk/


The Connexions Service Overview

The connexions Service has been established to provide integrated information, advice guidance and access to personal development opportunities for all 13 - 19 year olds in England.
It aims to help young people engage in learning, achieve their full potential and make a smooth transition to adult life. This will be achieved by building on the work of a wide range of existing agencies in the public, private and voluntary sectors.
The level of support young people will receive will vary according to their needs. For some, it will be a light touch approach, with personal advisers often providing advice on post 16 learning options to groups of young people or directing them to other information sources including web-sites.
For others, who have a range of problems, personal advisers may need to provide intensive one-to-one support over a long period, and/or broker access to specialist support from another professional.
For others still, the focus will be on detecting the early signs of social exclusion and preventing escalation of adverse circumstances. Opportunities for young people's personal and social development will also be wide ranging.
FREEPHONE: 080 800 13 2 19


 

Social development for teenagers with Down syndrome (11-16 years)

Item ref.DSi'i-14-04 Incl. VAT Price £6.20
Social development for teenagers with Down syndrome (11-16 years)
Sue Buckley, Gillian Bird and Ben Sacks
This practical module provides guidance to parents and to teachers to enable them to encourage the development of age appropriate social interactive skills and behaviour for teenagers with Down syndrome during their secondary school years. Parenting styles, teaching styles and interpersonal relationships influence the behaviour and social development of teenagers with Down syndrome in just the same way as they do for all teenagers. Good and bad behaviours are learned and shaped by the behaviours of those around the young person. The importance of expecting age-appropriate behaviour, at home, in school and in the community is stressed and the principles for effective behaviour management are set out in detail. The importance of friendships and social independence is particularly important at this time and strategies for developing
j friendships and community participation are discussed. This practical module is intended to be used by parents, teachers and other practitioners in conjunction with
DSii 14-01. Expected publication date: 2005
Downloaded from the Downs ED web site (E&OE)

http://www.downsed.org/

Tel (0)23 9285 5330



 

Joe's Holidays

This year, mum, dad and I spent the Easter holidays in New Zealand .
We stayed with my Uncle David, Aunty Wendy and my cousins Carlo and Alex who went to live in New Zealand two and a half years ago. They live in a little town called Balclutha, which means town on the Clyde;
they will soon be moving to an even smaller town called Kaitangata which is about 12 kilometres down the road. Balclutha is about an hours drive south of Dunedin on the South Island of New Zealand.
We had a great time. Aunty Wendy let us borrow her car so that we could get around
and see a lot of places. I liked seeing my cousins and I hope I will be able to go back
and see them again some day ( so do mum and dad!).
Joe Baxter (aged 12)



 

DONATIONS

 
  Mrs Marie Crist
In respect of her late husband
Francis Crist (grandad of Amy Crist)
£295
THANK YOU

ED'S Note

We hope you found the newsletter interesting and informative - you will note the absense of a members' page, well we had nothing sent in to us......looks like nothing's happening out there in our community, either that or you're all shy. Now come on and send i8n some snippets of news for us to share. We only get together at Christmas and sometimes at the AGM, so it's nice to catch up by reading about our members in the nwsletter.  A couple of  photos or a few lines about a day in the life of your family member with DS. It's useful to share our experiences and we can learn from and help each othr.

I'll wrap up now bur before I do, please be advised that the newsletter is also published on the web which, loke every other site on the web is available for the world to see. If you are in any way concerned about children's photos being accessable to all, please let us know and we will not publish them on-line.
Please read our disclaimer here.  for more details.
Stay at peace with the world,

Glen Fletcher,
DSL Newsletter editor.


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All views expressed in this newsletter are the personal views of the contributors and do not necessarily reflect the views of  Down Syndrome Liverpool