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At
the April 1998 British Fertility Society conference a session was
devoted to considering the implications of the fact that in 2010
the HFEA register will become accessible to 18 year olds who want
to know if they have been conceived through DI (though the only
answers they will be able to get are yes or no).
Olivia
(and Walter) were invited to address the meeting, and she chose
to speculate about how the world might seem by then...
Bringing
into the world - and then bringing up - children who are destined
never to know one half of their genetic make-up undoubtedly presents
a challenge. I sometimes feel sad that a number of DI conceived
adults have placed so much importance on genes. To me this seems
to confuse the wish for information about genetic background/medical
history with lack of a sense of identity. But perhaps this is what
happens when people have been deceived for so long and are deprived
of what is apparently such powerful information.
The
answer to the question "Who am I?" is so much more complex than
simply finding the sources of DNA and genetic material. I often
think about my own father who was Italian and that my sense of being
half-Italian came from living with a man who spoke as eloquently
with his hands as his voice, and who cooked pasta every Saturday
evening at a time when foreign food was considered exotic and strange.
I am sure it was my close relationship with him and the culture
of our household that gave me the Italian part of my identity, much
more than the genes I inherited. Some adults conceived through DI
, as well as being told of their origins in difficult circumstances,
seem to have had unsatisfactory relationships with their fathers,
perhaps because the very fact of their unacknowledged DI conception
was something their fathers could not come to terms with. Many of
us feel that the insecurity and low self-esteem that can come from
disrupted family relationships might lie at the root of their identity
difficulties, with DI being an exaggerating feature, or even sometimes
used as a scapegoat.
It
was at least partly because identity seemed to be made up of so
much more than genes that Walter and I made our decision, very unusual
back in 1983, to be open with our children about the facts of their
DI conception. It felt to us and apparently an increasing number
of others we discovered, when we helped found DI Network, that being
responsible parents included more than loving and nurturing our
children - it meant being honest with them as well. We believed,
and still do, that a strong emotional bond developed through good
quality parenting, could offer significant shelter if not complete
protection against despair and the "genetic bewilderment' that some
doomy commentators had predicted.
Seventeen
years have now passed since the Network was first started in 1993
and during that time many of our members have had the chance to
anticipate and think through the issues our children were to face
later on. Many of the children, told early on in their lives about
their origins, have absorbed the knowledge with equanimity. For
some of course the lack of information has been the source of some
sadness and frustration. But their ability to contact others through
the Network has helped. Our experience of families in the Network
leads us to believe that those who have been able first to grieve
the 'what might have been' and then to manage the mixed feelings
inevitable in having and bringing up DI children, have done well,
with lower than average divorce rates and higher than average family
satisfaction.
For
others the frustration has been considerable. There is no doubt
that the lure of the secret unknown is more tantalising than the
hum-drum reality of open information. A large percentage of adopted
adults have shown interest in having some information about their
birth mother although a much smaller proportion have then gone on
to contact their birth parents. Open information has not only been
possible but positively encouraged for some time in the case of
adoptees. The very high percentage of those conceived through donated
gametes who have expressed the wish to find out more, remains inexplicably
frustrated by legislation.
The
experience of the pre HFEA offspring, a number of whom are now well
over thirty tends to support what we had suspected - that the main
interest in the search for genetic connections occurs not at 18
but in the late twenties or early thirties. It is at this time that
people establish a clear separation from parents and wish to see
themselves in some perspective. They begin seriously to contemplate
the future. They form deeper personal relationships and begin thinking
about becoming parents themselves. Among the post HFEA cohort the
"search for connectedness", we may predict, will gather momentum
over the next ten years, say around 2020. The most frustrated are
individuals who were not told the truth early on, but learned it
in their teenage years often following the split-up of their parents.
These parents feel doubly guilty both at having harboured a secret
they could not in the end keep, and also at the break-down of their
relationship. We continue to listen and learn how those conceived
through DI feel. Their feelings must always inform and guide our
responses, even if what they say is not comfortable to hear.
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