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1.
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Before
looking at any consultation document and using the prompts provided
on the separate sheet, start by thinking what you would want to say
about: |
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(a) |
the
Regulations to govern the use of the Register of Information |
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(b)
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the
sort of information that you think should be recorded from now onwards
about donors: |
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(c)
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donor
anonymity in general |
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| 2.
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mark
your list according to which you think should have highest priority
- i.e. which do you care about most strongly at this moment in time
(1 being the highest priority). Note why these are the
most important points for you. |
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| 3. |
Look at the list below and see if you want to add or alter anything
to your answers to Question 1 when you think about your responses
as, say, a parent and a daughter; or a donor offspring and a brother
etc. |
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For
parents of donor offspring: as a parent as an individual as a partner
(if in an adult relationship) as a son/daughter/family member of the
wider family |
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For
donor offspring as a person conceived through donor assisted conception.
as a son/daughter as a brother or sister of someone conceived through
donor assisted conception as a brother or sister of someone conceived
another way |
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For
donors as a donor as a partner (if in a relationship) as a parent
of non donor children, if a parent as a son/daughter/family member
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For
others as a family member of someone conceived using donated sperm
or egg. |
| 4. |
list
the other members of your immediate family and then jot down what
you think they might say if/when they are filling this in
In
doing this, you may want to think about the following:
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1.
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in
relation to access to information, what helps me and makes it easier
in managing this part of myself? |
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2.
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and
what hinders me/gets in the way/makes it more difficult in managing
this part of myself?) |
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| Some
matters to consider as you put together your response: |
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Would
you like the Regulations to allow, or make easier, any of the following?
|
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| Access
to past information about the donor |
-
biographical
- medical
- information about his/her wider family
- letter from donor
- photo of donor
-
written record - HFEA form and/or medical notes
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| Access
to current information about the donor |
-
medical
- lifestyle/biographical
- number of other children conceived through whatever route
- information about his/her wider family
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| Chance
to meet with donor face to face: |
-
for donor offspring only
- for parent/s only |
| Knowing
the identity of the donor |
-
for donor offspring only |
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- for parent/s only |
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Should
there be any changes to the way in which the birth or medical records
of donor offspring are recorded which ensures that they will find
out about the nature of their conception regardless of whether their
parents or others tell them (as with adopted people or people born
as a result of surrogacy)? |
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Should
medical records automatically include the fact that the conception
was donor assisted? |
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Which
public bodies or professional groups, if any, should have automatic
right of access to information (e.g. health, insurance, employers)?
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| What
do I need/want to know: |
-
now
- in a year's time
- in 5 years time
- in 10 years time
- in 20 years time
- in 40 years time
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