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We hope that you will find this site useful. It is intended to help people with oesophageal problems to find information, and to read about how other patients cope with their problems.
We have no sponsorship and are funded entirely from voluntary donations. We do not provide advertising space or links on this website.
This website was created and is maintained by a member, Gwen Harlow.
We are a very small local organisation in the UK, but we have links with other groups both here and in the USA. The Internet has made it possible to be international and we welcome anyone from anywhere. Unfortunately we are unable at this time to provide any other language than English.
One of us visited a member of the International EC Group in Hawaii in 1999, and in 2001 an American member visited us here in Hull. In 2003 we also had visitors from Australia, who since founded the Melbourne Oesophageal Support Group, now renamed as the Victorian Patients’ Association.
We welcome anyone to our small friendly meetings, so please do call if you are in our area. The meetings list is on the Local Events page, under the Who We Are button.
Site updated: 15 June, 2008
We would like to say a big thank you to Mr Colm O’Boyle, the former Lead Clinician for Upper GI in our area. He visited the group, and always supported us.
We wish him all the best in his new position in Ireland.
Another comment:-
"In a career spanning nearly forty years I knew many patients with oesophageal cancer and other oesophageal disorders. I saw the distress and the difficulties suffered by individuals and their families as a result of these diseases.
Doctor and nurses are nowadays able to alleviate many of the unpleasant symptoms which arise from the condition itself or from the treatments used to deal with it. In my experience, however, one of the greatest helps was for patients to be able to talk to other patients who had already been through the process and were able to reassure them that what they were going through was to be expected, that they were not alone in this and could give them simple tips on how to cope with some of the problems.
Bearing in mind that the idea is not to give medical advice, I am happy to give my full support to this initiative which can really help a lot of people through some of the most difficult times of their life."
Professor Raymond Donnelly, FRSCE Founder and President of the Roy Castle Foundation.
Use the box to search this site.
Registered Charity Number: 1015739
Webmaster: Gwen Harlow
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