Newsgroups are a great way of finding info and talking to other web users – its like everyone’s in the same room talking to each other! I recommend that you look at
news.announce.newusers and
news.newsusers.questions for general rules of conduct and usage before using these below;
alt.med.cfs
alt.med.cfs.info
alt.health.cfids-action
bit.listserv.cfs.newsletter
alt.med.cfs.open
uk.people.support.cfs-me
- If any of the above newsgroup links don't work, I'm afraid you'll have to type / copy&paste the newsgroup title into your news reading software.
Access Business Online is a very powerful business tool which contains news, directories, classifieds, articles, databases, international buyer-seller connections and BizWiz!
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B.R.A.M.E – Blue Ribbon for the Awareness of M.E., aims are to support sufferers and their families, and who promote international awareness of M.E.
The CoCure list, "Co-operate and Communicate for a Cure", is an information exchange point for medical/clinical, political, patient groups, also access to their mailing list
25% Group - dedicated to the support of severly affected PWME's, as well as promoting the plight of PWME.
CINDA - an organization supporting, educating and promoting the goals of all invisible disease groups, including CFS, CFIDS, M.E., FM, FMS, GWS, GWI, MCS and others
Sutton ME Support Group - a group for advice, and support for Sutton and surrounding members (London)
CFS News - US
site full of the latest news, information and research on all things ME/CFS related. Well
worth using.
ChronicIllNet - a site devoted to all chronic
illnesses such as cancer, MS as well as CFS/ME
David Axford - links to
many national and international resources on ME., UK based and regularily updated
Southampton ME group - support, meetings
and info for Southampton area sufferers.
'Birds in a Garden' - the award-winning site of an ME sufferer and a keen bird watcher in Cheshire
Alaska CFIDS Association (ACA) - support, awareness, education and resources for fellow Alaskan sufferers
Clwyd Support Group - support for sufferers and their families, meetings in Wrexham & Flint
Mid-Wales Support Group - Support for PWME in Aberystwyth, Tywyn, Aberaeron, Lampeter.
Disability Now are the UK's leading disability publication, and contains massive amounts of archived disability information and many links to other charities.
Alison Hunter Memorial Fund
- "To reduce the impact in the community of the disease myalgic encephalopathy /
chronic fatigue syndrome" - Australian based organisation
MPWC (Medical
Professionals/Persons with CFIDS) - USA group for medical workers. Latest news and
links, and a Physician’s pamphlet for kids with CFIDS(ME) complete with a
bibliography. Hyperlink shown is for their very informative & interesting current
newsletter,
Leeds & District ME Group
offer support, advice and someone to chat to for sufferers and carers in their area.
M. E. BBS Information Mailing
Service is a service for people who don’t have access to Internet or Fidonet. It
provides a monthly postal compilation of all things ME/CFS found on various networks, and
there is also a vast reference library of current and past research papers and
information.
AYME is a UK based group aimed at supporting
PWC’s under 25 years old.
R.E.S.C.I.N.D. is a US group fighting for a change of name to something which better describes our illness, and lobbies for more goverment research & support.
The Massachusetts CFIDS Association - support for CFIDS, CFS, FMS, ME research and promoting medical and public education.
TOC H - a world-wide organisation dedicated to helping make all people feel equal.
Healthlink USA - a good starting point for people who are searching the internet for information on a wide range of specific health topics.
Sallie Goetsch's personal pages - a classicist and ME sufferer.
Overton Studios Trust - an online support point for holistic healing for ME
UK M.E. Web - UK-based, some resources, needs updating
TipTow Trailers - Trailers for ferrying around wheelchairs
And
finally, we can't forget........
Ed Doolan MBE- Our patron, and the
conscience of Birmingham
Online acronyms:- PWC – Person With CFS/ME
GWS – Gulf War Syndrome IMHO – In My Humble Opinion
:-) - a grin! (it is a face on it’s side!!)
WRITING IN CAPITALS - shouting!!