It seems more than a strange conicidence that poeple
with M.E. can develop new skills and new forms of expression. Maybe it's because of the
way the illness affects our bodies, or perhaps it's because of the total change in
lifestyles the illness brings about - whatever causes it, it only serves to enrich our
lives. Poetry is one form of expression that seems more than others to come to the
forefront with the illness; even those of us that were normally disinterested in
literature and/or were weak at english/prose, it seems that these skills are bought to the
forefront.
On this page we hope to
bring some of the prose our group's members have submitted, as well as other poetry found
elsewhere on ME related sites/chatgroups. I'm splitting the content of the page into 2
groups; ME related poetry and general poetry. If you are feeling down, you're less likely
to want to read ME-related poetry!
If you want to submit
prose to the group, use this link
to email the webmaster.
ME-Related Poetry General Prose
| MY
BIRTHDAY (another year destroyed by M.E) Another year gone. Vanished into time on some parallel conveyor belt. As it passes, I grab hold and hang on for dear life - Screaming at it to stop, Pleading with it to wait, to let me catch up. But it has no heart And with little effort (Save that for show) It struggles free And is gone. I am left with just my bleeding hands And the echo of a scream inside my head. Vicky |
M.E. Prison without trial A coffin of flesh and blood A living hell. Pain without gain A war without medals A smile without joy A silent scream A living hell. Alive but not living Being but *not* being Loving but not feeling Coping but *not* coping Hoping without hope. Seeing but not doing Fighting but not winning Begging, pleading, promising anything, Life without life A living hell M.E. Vicky |
The outing I wish I could explain to you, the way I feel today... "But you look fine.. I thought we'd go..C'mon,what do you say?" The way I look's not how I feel. I'd like to.. just not now! Their hurt look, the guilt in me, If I resist - a row.. So off we go, the car ride's fine, well..close my eyes, pretend. Flashing sun between the trees - a headache 'Nurofen' won't mend. Arrive. Can't park in the disabled bay, can't get the orange badge! The DSS doc says I can walk, well at least I can today. "A walk in the woods will do you good". Spiritually, yes it will, Rustling treesand shady nooks please my soul but can I pay the bill? Just twenty minutes thats my lot; I must go back right now! "Just five minutes more.." they plead and I give in, for the last time I vow! That was yesterday....I think.. Shouldn't give in to guilt and others.. But ME affects the whole family not just the mothers. Jacki Carter |
| I know I
sometimes moan and sigh but without you three I'd just sit and cry. Although looking after you does tire me more than anything you inspire me. At times I may feel,'oh what the hell' You give me the will to get well. Because you all make up my life My purpose is that of mother and wife. So long as I have got you three I know I can cope with this bloomin' M.E. ( To my precious husband and children ) Tracy Lucas. |
Could tomorrow
be a better day Lets wait and see, hope and pray Optimistic me, thetas what they'll say Oh please god, let it be a better day. I don't really care anyway If 'tomorrow never comes' as they say Because if I get my wish of yesterday Today is going to be that better day. But if your today isn't any better Just pick up your monthly M.E. Newsletter You don't have to sit and feel all alone Thanks to our Steve, we are not on our own You can be sure he'll do what he can Thank goodness for Steve, our own Superman. Tracy Lucas. |
| Chronic Fatigue Its not a pretty sight or subject Its doesnt even have the lure that a bad subject does Its relegated to its lowly place with things like fungus and vomit diarrhea and douche Under your breath I hear you say, "lazy" when you learn my secret ambition is to find a couch and lie on it My secret symptom of modern perversion like Agent Orange or Gulf War Syndrome ITS ALL IN YOUR HEAD Tell that to the babies with no limbs to the vaccine injured kids Tell that to the mercury in my mouth or the hormone fed antibiotic filled mad cows Tell it to the genetic clones and those world trade clowns Its all in your head? Tell that to the Martin Luther Kings family |
Tell it to the tribes downwind or my overburdened immune system Our bed is made now were surely going to lie in it and take our medicine for somebodys profit Youd think it was a conspiracy to keep us down but still consuming Its all consuming consuming us .. Chronic Fatigue is a metaphor a disease for those not easily labeled And remember this: The canary in the mine died of side effects ITS ALL SIDE EFFECTS But its all in your head my little secret my secret Do you want to know a secret? I dont know why were all not sick and tired of all these secrets Colleen Redman, USA |
General Prose Top of page
| A DAY
IN THE LIFE OF I was once a caterpillar Living off the leaves Then one day I felt a change Something I couldn't believe. I was now a butterfly Flying through the air In the sunshine and the rain I didn't have a care. Then one day it happened A little boy with a net He caught me with a swipe of it And kept me as a pet. My wings were broke when I was caught I was in so much pain The jar he kept me in was small I don't think I'll fly again. Well, I died that day A butterfly no more So I went to heaven But I had to settle a score. I came back as a lion I lived in a big zoo The little boy came visiting Now he is dead too. You see, he reached over too far I'd got him in a flash Revenge is sweet for butterflies So be careful what you catch. Steve Jervis |
HOUSE
ON THE HILL There's a house with no windows It's just got a door Slates on the roof And tiles on the floor. The people who live there They never come out There's no noise from in there Nor even a shout. It must be so dark Not letting in light The people who live there They must think it's night. Everythings delivered Through the hatch in the door It stands at the top of the hill On the top of the moor. People say it's haunted They say, no one lives there But I see the things No one else can see there. The moral of the verse Is never take things for granted Its a house with no windows But the place is enchanted. Steve Jervis |