Homepage UK Groups Other Resources
Internet Links
MECHAT members page is a page where people can find out more about MECHAT subscribers as well as ME info.
UK M.E. Web is a
listing of all known web links and resources relating to M.E. mainly in the UK, but some
useful references for international web site are here as well
B.R.A.M.E – Blue Ribbon for
the Awareness of M.E. are a group whose aims are to support sufferers and their families,
and who promote international awareness of M.E.
CFS News is an US site full of the latest
news, information and research on all things ME/CFS related. Well worth using.
Sutton ME Support Group - a group
for advice, and support for Sutton and surrounding members (London)
The CoCure list, "Co-operate and Communicate for a Cure", is an information exchange point for medical/clinical, political, patient groups, as well as other organizations/institutions in all things ME as well as overlapping illnesses
ChronicIllNet is a site devoted to
all chronic illnesses such as cancer, MS as well as CFS/ME
David Axford’s
wonderfully laid out and informative site has links to many national and international
resources on ME.
The Gloucester City Group
is a localised support group, they also carry a comprehensive library of books and tapes
on ME/CFS.
Disability Now are the UK's leading disability publication, and contains massive amounts of archived disability information and many links to other charities
Ted Shaw’s Aussie-based
homepage has many scientific papers and links, as well as massive amounts of info on the
‘Sydney Conference’ on CFS/ME.
MPWC (Medical
Professionals/Persons with CFIDS) as the title shows, is a rather unique group based in
the USA for medical workers. Latest news and links are included on this site, as well as a
Physician’s phamphlet for kids with CFIDS(ME) complete with a bibliography. Hyperlink
shown is for their very interesting & informative current newsletter.
‘The Northern Rivers
ME/CFS/FM Support Association’ is another Aussie-based site which caters for PWC in
the New South Wales & Queensland areas. Their newsletter goes out Australia-wide and
internationally,and have a lovely ‘Forget-Me-Not’ page to remember PWC’s
who are sadly no longer with us due to CFS/ME complications.
Leeds & District ME Group
offer support, advice and someone to chat to for sufferers and carers in their area.
M. E. BBS Information Mailing
Service is a service for people who don’t have access to Internet or Fidonet. It
provides a monthly postal compilation of all things ME/CFS found on various networks, and
there is also a vast reference library of current and past research papers and
information.
AYME is a UK based group aimed at supporting
PWC’s under 25 years old.
R.E.S.C.I.N.D. is a US group fighting for a change of name to something which better describes our illness, and lobbies for more goverment research & support.
Online acronyms:- PWC – Person With CFS/ME
GWS – Gulf War Syndrome IMHO – In My Humble Opinion :-) - a grin! (it is a face
on it’s side!!)
WRITING IN CAPITALS - shouting!!
The Massachusetts CFIDS Association - support for CFIDS, CFS, FMS, ME research and promoting medical and public education.
And finally, we can't forget........
Ed Doolan MBE - Our patron, and the
conscience of Birmingham
NewsGroups
Newsgroups are a great way of finding info and talking to other web users
– its like everyone’s in the same room talking to each other! I recommend that
you look at
news.announce.newusers and news.newsusers.questions for general rules of
conduct and usage before using these below;
alt.med.cfs, alt.med.cfs.info, alt.health.cfids-action, bit.listserv.cfs.newsletter, alt.med.cfs.open, uk.people.support.cfs-me
Searching the internet can be a time consuming and costly (for the Uk anyway!) business. To take the strain out of this, WebFerret can be used to access multiple search engines for you and corellate the information for you all seamlessly. Click on the hyperlink for a free download
www.filez.com is a superb way of searching for files when you know the name - eg if you were downloading a file, and it was taking a long time, try www.filez.com for the file, there maybe another server with that particular file on that is faster.
Clipart - try Xoom ( you need to register here to use them), or AppleCity Mall. Both have a vast, good library.
News/media links
www.bbc.co.uk/news
www.telegraph.co.uk
www.guardian.co.uk
www.pa.press.net/
www.alertnet.org/alertnet.nsf/?OpenDatabase
(reuters)
www.demon.co.uk/eurojournalism
www.newspoint.co.uk/np1002.tml (House
of Commons)
www.dds.nl/~kidon/media-link/ (links to
newspapers, magazines, TV, radio and news agencies.)
www.dds.nl/~kidon/media-link/ukpapers.shtml